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13-132S-2
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Enroll-HD: A Prospective Registry Study in a Global Huntington's Disease Cohort
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Dr. Glenn Konopaske
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Enroll HD is a worldwide observational study for people with HD and their family members. We are collecting data in an effort to improve our understanding and treatment of HD.
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Huntington's Disease
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Rare Diseases
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Any individual who knows they carry the gene for HD. Individuals who are at risk for HD but have not undergone genetic testing. Individuals who have a family history of HD but know they do not carry the gene for HD. Spouses/partners (not blood related) of family members with HD.
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Sumith Abraham Varghese. Telephone: 860-679-4903. Email: abrahamvarghese@uchc.edu or Judith Kalinowski. Tel. 860-679-3681. Email: kalinowski@uchc.edu or Robin Browne. Tel: 860-679-4418. Email: rbrowne@uchc.edu
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Enrolling/recruiting. For current recruitment status, please check with study contact.
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